Program awards scholarships to women diagnosed with hemophilia or von Willebrand disease pursuing higher education. Program awards a scholarship to student a with significant bilateral hearing loss pursuing higher education at an accredited non-profit school. Learning Disability, Dyslexia, ADHD, Autism. All other trademarks are the property of their respective owners. An educational scholarship to full-time undergraduate students at JSU, with a preference to those with a sensory impairment. Program offers scholarship for students with hemophilia B and their sibling to pursue higher education. Educational scholarships awarded to individuals who have been affected by cancer, either by their own diagnosis or that of a loved one. She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). Program provides a scholarship to families who have suffered the loss of a parent or primary caretaker. An educational scholarship for students attending a California college/university with a learning disability in math. If you're living in the U.S. with a rare disease and age 17 or older, this scholarship could help you pursue your learning goals. Full and partial scholarships awarded to families with children attending DYF programs. Mental Disability, Behavioral Disorders, Eating Disorders. Provides scholarship awards of up to $1000 to young college bound adults diagnosed with ADHD or other learning disabilities. Forming a new rare disease community. Research & Scholarship Overview; Patient Care Research. Program awards scholarships for students affected by epilepsy and other seizure disorders pursuing higher education. A scholarship to help individuals with the financial funds to attend Indian Trails Camp. Program provides scholarships of up to $1000 to young men and women who are cancer survivors. The FDA Center for Drug Research and Evaluation (CDER), Center for Biologics Evaluation and Research (CBER), and Center for Device and Radiological Health (CDRH) all support the development and. Chronic, Serious or Life Threatening Illnesses, Chronic, Serious, or Life Threatening Illnesses in Children. Program offers scholarship for students with a spinal cord injury who attend or planning to attend University of Utah for undergraduate or graduate studies. Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics. Program provides two $500 scholarship to college and university students with a mobility disability. Phone: 1-800-936-1363. Our organization is run 100% by volunteers and 100% of the money we raise is used to assist students or brain tumor families during the most difficult time in their lives. Go here to apply. Cystic Fibrosis, Child with a friend or loved one with a chronic or serious physical illness. Learning Disability, Speech and language Delays or Impairments. An opportunity for patient advocacy leaders to improve the health and mental well-being of the rare disease community-including children, siblings, caregivers/care partners and those who are grieving. Scholarship funds to partially sponsor visually impaired students ages 12 to 18 years old, who wish to attend Space Camp. The amount available varies year to year. Program provides a $1000 educational scholarship for individuals who have been diagnosed with Autism Spectrum Disorder (ASD/Autism). Program provides partial and full scholarships, and financial assistance to campers in need. Rheumatoid Arthritis, Multiple Sclerosis, Hepatitis C, Crohn's Disease. Program offers scholarships for individuals with disabilities for the purpose of paying academic expenses for an aviation career. Program provides a $1500 scholarship to a college student diagnosed with hemophilia or other bleeding disorders. Program awards scholarships for children who've lost a parent to breast cancer. Provides scholarships to veterans or spouses of disabled veterans who have served in the United States military, including the Reserves and National Guard pursuing higher education. Deafness, Hearing Loss, Child with a sibling or parent with a disability. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. Program awards hope and inspiration by granting need-based scholarships to high achieving cancer survivors interested in the food service industry. Scholarship awards from $500-$2000 to subsidy college education for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Program offers college scholarship to individuals who are living with vision loss or blindness. Scholarships awarded to current or former cancer patients of the Valerie Fund for post-secondary education expenses. Program awards scholarships to students that are blind, low-vision or have a physical disability pursuing higher education. Program awards (2) scholarships to individuals with down syndrome who are pursuing educational or job training opportunities beyond high school. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. An educational scholarship awarded to hearing children of deaf adults to help them pursue their post-secondary education. Program awards a scholarships to students who use a cochlear Baha device and who are high school seniors intending to pursue higher education. This scholarship program is through Sanofi. Crohn's Disease, Bowel Diseases, Inflammatory Bowel Disease, Digestive and GI conditions, Ulcerative Colitis, Irritable Bowel Syndrome (IBS). Scholarships awarded to talented LGBTQ Engineering students in STEM fields pursuing degrees in science, technology, engineering, or mathematics programs. Provides educational scholarships to young adults with who are cancer survivor or current patients, and are pursuing their education. Cystic Fibrosis, Chronic, Serious or Life Threatening Illnesses. Child with a parent or sibling who has or had cancer. For link problems or other technical problems, send an email to
Program awards a scholarship to individuals relying on HPN, HEN, or HPEN for their primary nutritional needs, to further their educational goals. Diseases requiring enteral or parenteral care, Gastrointestinal Disorders. Program offers a scholarship to a high school senior who is hard of hearing and continuing their education. While scientific advances continue for many of these diseases, individuals living with such disorders still encounter obstacles in achieving traditional life milestones. Scholarships awarded for LGBTQ undergraduate students in Engineering pursuing degrees in STEM programs to promote academic excellence and increased visibility of talented LGBTQ+ students in STEM careers. Program awards kidney/transplant or urology patients, family members or medical caregivers who deserve to be recognized for their courage, strength, determination, generosity of spirit or kindness. Program awards scholarships to children and young adults living with sickle cell/and or thalassemia. Kidney and Urology Foundation of America, Inc. Lupus Foundation of America Florida Chapter, Lupus Inspiration Foundation for Excellence (L.I.F.E. Browse by Disease. Program offers financial scholarships and support services to students diagnosed with epilepsy. Program provides a scholarship to a student of any age diagnosed with hemophilia B, and are pursuing post-secondary education. Primary Immunodeficiency, Bleeding Disorders, Cancers, Infertility, Hepatitis C, HIV Treatment/Prevention, Diabetes, Rheumatoid Arthritis, Multiple Sclerosis, Crohn's Disease, Asthma, High Cholesterol. Awards are granted without regard to race, color, creed, religion, sexual orientation, gender, disability, or . HONcode standard for trustworthy health information: Program provides college scholarships to individuals diagnosed spinal cord injuries, spina bifida, transverse myelitis, neurogenic bladder, or ostomy (ileostomy, colostomy, or urostomy). A GPA of 3.0 is required and commitment to extracurricular activities. It does not provide medical advice, diagnosis or treatment. Program offers a scholarship to a person diagnosed with Common variable immune deficiency, selective IgA deficiancy or Familial Agammaglobulinemia pursuing higher education. Program provides financial assistance toward higher education for exceptional students living with cystic fibrosis. Program offers awards to students with a parent diagnosed with ALS, continuing their education. Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. August 10, 2020. All high school, undergraduate and graduate students with an interest in rare diseases are eligible to apply. Hearing or Ear Conditions, Hearing Loss, Deafness, Cochlear Implant. Program awards a scholarship to men and women with hemophilia pursuing higher education. Bleeding/Clotting Disorders, Hemophilia, Von Willebrand Disease. Program awards multiple master's and doctoral scholarships to students who are undergraduate seniors or students who are currently pursuing master's or doctoral degrees in communication sciences and disorders. Scholarships will be awarded based on the completion of a short essay as well as consideration of the applicants leadership, participation in school and rare disease community activities, work experience, academic performance and financial needs. "We all have diagnoses, and we all have disabilities and abilities," said Stephanie DeLuca, an . $3,000 scholarship to a Navy ROTC midshipman majoring in electrical engineering. Program awards a scholarship to student with cancer which resulted in delayed college entry. Must demonstrate a commitment to furthering LGBTQ+ visibility, diversity, and inclusion in the biosciences. Awardees will be notified in October. Awards $3500 college scholarships to childhood cancer survivors, under the age of 25. Financial assistance grants for people under 21 without medical insurance to put towards diagnosis and treatment. Blindness in family member, Military wounded, Children with a parent wounded, disabled or killed in military service, A scholarships is awarded to a spouse, dependent child or grandchild of a blinded veteran or an Active Duty member of the. Mental Illnesses, ADHD, Bi-Polar Disorder, Depression, Eating Disorders, Posttraumatic Stress Disorder, Schizophrenia. Provides scholarships to assist paralyzed veterans (or the spouse or dependent child of a paralyzed veteran) in reaching their post-secondary educational goals. Program offers scholarships to adults with ASD who want to pursue a post-secondary education. Applicants must accept their award by Friday . Program awards scholarships to students, parents or siblings impacted with hemophilia, von Willebrand or related blood disorder to pursue higher education. Two $500 Chinn Scholarships for LGBTQ Atheist Activism that recognize atheist activism in the area of LGBTQ equality. March 15, 2023 - Scholarship Application Window Opens. Provides financial assistance to individuals diagnosed with hemophilia A or B, including those with inhibitors (Factor VII or IX deficiency), or von Willebrand Disease. A scholarship for adults with rare diseases in a variety of educational pursuits regardless of treatment status. Scholarship awarded to a student seeking to attend law school who has been affected either directly by leukemia or lymphoma or by that of a family member. A scholarship for students with disabilities or injuries in need to financial assistance for educational purposes. Applicants do not need to be pursuing a degree to be eligible, but they have to be U.S. residents over the age of 17. Program awards scholarship to high school seniors with learning disabilities pursuing higher education. Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics (STEM) or STEM-related teaching fields. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. They must be enrolled full time sophomores or juniors at the time of application. Research & Scholarship. Provides scholarships to students with disabilities. Provides a $2500 scholarship awarded to children of firefighters killed in the line of duty planning to attend a university, accredited college or other institution of higher learning. $2,500 scholarship awarded to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency to assist in college education cost. Foundation for Rare Diseases. Shes won a Society of Professional Journalists award for outstanding reporting. Provides scholarships to children who have or have battled a pediatric cancer, and their siblings. "NEMSN's Board thanks you very kindly for your scholarship to our organization to attend the 2020 Rare Summit. This scholarship is for young women majoring in Business. Program awards scholarships for self-identifying lesbian, gay, bisexual, and transgender/gender non-conforming high school seniors who are pursuing higher education. Programs are listed in alphabetical order by program name. Scholarships open to any college-age young person with PKU who is on diet treatment, pursuing an undergraduate studies. Program offers a scholarship for deserving students with a disability who are pursuing undergraduate/graduate studies. Disability - Physical, Disability - Cognitive, Disability - Emotional, Learning Disability, Social Disability, Sensory Disorders. Always check with the individual program if you have questions. Program offers financial support scholarships for exceptional students living with a chronic inflammatory diseases. An educational scholarship for an individual diagnosed with Autism Spectrum Disorder. Program awards a scholarship to an individual pursuing a junior college, undergraduate or graduate degree student who has a sibling with down syndrome. Program provides scholarships to students with a documented language-based disability. Provides academic scholarships to deserving students diagnosed with Tourette Syndrome or Chronic Tic Disorder. We want our community to have an opportunity to pursue their dreams to be teachers, doctors, lawyers, executives, artists, or anything they aspire to be., For the past 11 years we have been working to remove roadblocks for the development of lifesaving treatments and diagnostic opportunities for rare disease patients, she added. To support people living with rare disease while navigating obstacles to education, we have partnered with the EveryLife Foundation for Rare Diseases to establish the #RAREis Scholarship Fund. An educational scholarship for an individual diagnosed with epilepsy. Scholarships will be awarded based on the essays, demonstrated leadership, participation in school and community activities, work experience, academic performance, and financial need. Program offers educational funding for cancer patients and cancer survivors to continue their education. Please check back in March for program information for the 2023 academic year. An educational scholarship for a surviving spouse or child of a deceased service member from a service-related death or a veteran with a 100% service-connected disability. $3,000 scholarship to an ROTC student in the Air Force option who is attending a university located in the AFCEA Mid-South Region of the United States, including Louisiana, Mississippi, Alabama, and northwest panhandle of Florida. Authors feature an atypical case of COVID-19 presenting with a rare cause of abdominal pain and severe hyperglycemia. Program provides scholarships and educational counseling to children of military personnel who have lost a parent in the line of duty. Living with a rare disease can create many challenges accessing education shouldnt be one of them. by The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to . An educational scholarship for disabled military veterans enrolled at Texas A&M University. Program provides scholarships to students surviving breast cancer, or have a parent or guardian surviving breast cancer. Program provides scholarships to one female and one male student athlete who are legally blind pursuing a higher education. This scholarship is for young women pursuing a STEM major. Provides a scholarship to a high school, undergraduate or graduate student who has cerebral palsy. A scholarship for people with hemophilia B to use for any type of post-high school education. Sort by: Name **Filter Feature In Development** Program provides a financial award of up to $1000 annually to a high school senior with a language-related learning difference pursuing a career in the visual arts field. Autism, ADHD, Brain Injury, Deafness, Learning Disability, Spina Bifida, Bi-Polar Disorder, Cerebral Palsy. A wish grant of 2,000 dollars maximum provides cancer patients between the ages of 18-39, something positive to focus on while they are currently receiving active treatment. Program awards a scholarship to a person diagnosed with Hemophilia A/B (and symptomatic carriers), Von Willebrand Disease or rare factor deficiencies pursuing higher education. Program offers a scholarship to students with a disability attending the University of Utah. Applicants must plan to enroll full- or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational or technical trade school next spring. Scholarship awards 3 students an individual prize of $3000 to full-time college students diagnosed with low vision. All scholarship recipients will be selected by an EveryLife Foundation-appointed, independent board of reviewers. Provides a summer camp scholarships to children affected by epilepsy and in financial need. Program offers an award to an elementary, middle, or high school student diagnosed with kidney disease who has improved his/her academic or life skills. You are now leaving the #RAREis Community website. Provides over $20,000 in scholarships for camps to families affected by diabetes. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college . Provides three $1000 scholarships to individuals impacted by hemophilia or other significant bleeding disorder. Among the many new orphan treatments in 2020, several are particularly noteworthy, including a new drug to treat certain people with Hutchinson-Gilford Progeria Syndrome and . Program awards scholarships for students with disabilities pursuing further education in computer Science or related field. Two $2,500 scholarships each year awarded to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. webmaster. Child with a parent or sibling who has or had cancer, Bereavement. An educational scholarship for children of North Carolina veterans. Disability - Mobility, Disability - Cognitive, Disability - Developmental, Disability - Emotional, Disability - Intellectual, Disability - Mental, Disability - Physical, Special Needs, Asperger Syndrome, Learning Disability, Depression, Anxiety Disorders, Emotional Disability, Communication Disorders, Mobility Disability, Neurologic, Brain, and Seizure disorders. Thanks to the support of Horizon Therapeutics, The EveryLife Foundation is pleased to announce its third year of the #RAREis Scholarship Fund, a scholarship dedicated to the rare disease community. by Mary Chapman August 19, 2020. Scholarship program created to assist cancer survivors who plan to continue their education in college or vocational school programs. In conclusion, this map helps build a foundation for bridging genome biology and medicine and enabling new biomedical discoveries by connecting existing resources and tools across the spectrum of rare and common disease. Program awards two educational scholarships to students diagnosed with a bleeding disorder. Hemophilia - Inhibitors, Hemophilia, Blood Disorders, Von Willebrand Disease. Email: [emailprotected] Provides college scholarships to talented athletes diagnosed with type 1 diabetes. Program provides scholarship to an individual living with vision loss or blindness attending graduate school. Provides a scholarship to individuals that have been hurt in a car accident (in the Chicago area), or other types of personal injury situations and are struggling to keep up with medical bills and their day to day lives. Learning Disability, Dyslexia, Speech and language Delays or Impairments. Scholarship fund for college bound students of single parent homes due to a loss of a parent or guardian, due to breast cancer. Program awards scholarships to a high school senior who are patients of Colorado Allergy & Asthma Centers, P.C., for a minimum of one year pursuing higher education. Program provides scholarships to students with sickle cell disease who are pursuing higher education. This scholarship is for students pursuing a STEM major. A scholarship awarded to any current or soon-to-be undergrad who have had their life altered due to a bodily injury from an automotive or pedestrian accident. Program provides financial assistance of up to $500 to attend specialty camps for children affected by chronic illnesses. The mission of NORD is to improve the health and well-being of people with rare diseases by driving advances in care, research and policy. Program offers need-based scholarships and educational experiences to high achieving cancer survivors pursuing a music related field of study. Bleeding/Clotting Disorders, Von Willebrand Disease, Hemophilia . Advocating for Patient-Centered, Data-Driven Policy NORD helps drive more effective government policies by elevating the voice of the rare disease community. Program offers scholarships to those affected by inherited bleeding disorders pursuing higher education. Suite 700 Program awards a scholarships to men with hemophilia pursuing higher education. Educational scholarship awards of $2,500 to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency to further higher education. Program offers scholarships to survivors of intimate partner abuse, pursuing an education. Program awards multiple scholarships to Ally members who are legally blind or visually impaired completing undergraduate or graduate degrees. | The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to . An educational scholarship for undergraduate students attending college/university in the US/Canada with dyslexia and/or auditory processing order. Scholarships awarded to individuals who have been affected by HIV/AIDS, either by their own diagnosis or that of an immediate family member. In addition to a current transcript of grades and diagnosis verification form, applicants must submit an essay explaining their goals and how the scholarship would help achieve them. Program provides fellowships for deaf or hard of hearing students that have been accepted in an accredited graduate program in a college or university. Program awards scholarships for LGBTQ high school seniors who are actively and substantially involved in community service. National Hemophilia Foundation - Novo Nordisk, Inc. National Hemophilia Foundation - The Coalition for Hemophilia B, National Organization of Lesbian and Gay Scientists (NOLGS), Paralyzed Veterans of America Headquarters, Rexanna's Foundation for Fighting Lung Cancer, Shaundrika Taylor Cancer Foundation, Inc. (STCF), Sickle Cell Thalassemia Patients Network (SCTPN) - Brooklyn, Susan Satriano Memorial Scholarship Foundation, Teen with a Dream - A Pediatric Cancer Foundation, The Colburn-Keenan Foundation, Inc. (CKF), The SamFund - Support for Young Adult Cancer Survivors, The Susanna and Lucy DeLaurentis Charitable Foundation, Transplant Recipients International Organization, Inc. (TRIO), Turner Syndrome Society of the United States, United States Association of Blind Athletes, United States Association of Blind Athletes (USABA), University of North Texas (UNT) - Eagle Student Services Center, University of Wisconsin Madison Office for Students with Disabilities, Veterans United Home Loans - Veterans United Foundation, Women's Independence Scholarship Program, Inc. (WISP). Details Written: Monday, January 4, 2010 Available to students in every state in the continental U.S., the ChairScholars National Scholarship Program provides eligible high school seniors and college freshmen up to $20,000 for tuition to attend the college or university of their choice. Awards a scholarship to students who are manual or power wheelchair users for pursuing higher education. Child with a parent or sibling who has or had cancer, Lymphoma - Various Types, Leukemia, Children/Families In Need. Program provides scholarships to students who are diagnosed with colitis, Crohns, IBS, or any chronic medical issue. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Childhood Cancer, Parent, Family Member, Loved One With Cancer. How it works Program provides scholarships to high school and college students who have a demonstrated learning disability of dyslexia, and who wish to pursue a career in science, technology, engineering and math (STEM). Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Programs offers scholarship grants to children whose parent has been seriously or fatally injured in a work-related accident. Awardees will be notified in October. December 1, 2020 - Scholarship application closes December 20, 2020 - Finalists notified January 15, 2021 - Finalists must have all requirements submitted . Program offers FREE college admission and financial aid counseling and advocacy service to pediatric cancer patients and survivors. Program offers scholarships to students diagnosed with clinically significant bilateral hearing loss. Programs awards multiple $5000 scholarships to students in communication science master's or doctorate programs. An educational scholarship for spouses and dependents of service members. "Higher education is so important, and we are thankful to BioMarin for offering this scholarship to further help people living with a rare disease." BioMarin announced its RARE Scholars program on . Applicants must be Histio Warriors/patients, siblings, or child/grandchild of an adult patient. Scholarships awarded to two adults with cystic fibrosis who are pursuing a career certifications, associates, and bachelor and graduate degrees. Stroke, Spinal Cord Injuries, Paralysis, Spinal Cord Disorders, Neuromuscular Diseases, Parkinson's Disease, Cerebral Palsy, Brain Injury, Neuromuscular Disorders, Spina Bifida, Traumatic Brain Injury. Mary Chapman Physical Disability, Cognitive Disability. 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